Tribute to Baby Adam, Rest In Peace

Assalammualaikum wbt,

One of my TTC friend from my whatsApp group just lost her TTC baby, born just a month ago. Arwah baby adam was diagnose to have edward syndrome which is a very rare genetic disorder with unknown origin, detected when he was 29th gestational week. He was very strong when he was born as doctor predicted he could never survive for more than a week, but Allah give him a chance to give love to his parents until he was a month old.

Edward syndrome is a chromosomal abnormility of the presence of all or part of chromosome 18th. This happened during meiosis stage. Characteristic of baby edward are low bith weight, small jaw, heart defect, abnormal and small head.

May Allah give her and her husband strenght to face this challenge from Allah swt. From Allah we came and to him we will return.

My IVf journey - IVF Cost and Expenses

Assalammualaikum.

Disclaimer: post ini hanya applicable utk di hosp pantai bangsar under Dr Adilah Ahmat pada bulan Ogos 2015 shj

Saja buat disclaimer yela skrg cos rwtn berubah2 ikut tmpt masa dan perawat kite. So here we go!

28/7/2015-CD2

Scan RM143.10
Consultation RM111.30
Admin fees RM 11.80
TOTAL: RM266.30 inc GST

31/7/2015-CD5

Scan RM111.30
Consultation RM111.30
Admin fees RM 11.90
TOTAL: RM234.50 inc GST

1/8/2015-CD6

Blood test for: Full blood count, liver profile and renal profile  RM 120
TOTAL: RM120

2/8/2015-CD7

Medication:

pergoveris 8pcs X RM 370: RM 2960
Orgalutron 5pcs X RM190: RM 950
Crinon 1 box : RM 375
Decapeptyl 2pcs X Rm70: RM140
Needles and alcohol swaps: RM15
TOTAL: RM4440.00

3/8/2015-CD7 (S1)

Scan RM143.10
Consultation RM111.30
Admin fees RM 11.80
TOTAL: RM266.30 inc GST

7/8/2015-CD11 (S5)

Scan RM143.10
Consultation RM111.30
Admin fees RM 11.80
TOTAL: RM266.30 inc GST

10/8/2015-CD14 (S8)

Scan RM143.10
Consultation RM111.30 + RM42.40
Admin fees RM 10.40
Lab test for HEP B and HIV : RM60
Lab test for ahep B adn HIV for husband : RM57
Medication post OPU: carbegoline 4 tabs X RM33.75: RM135
TOTAL: RM560.30 inc GST

13/8/2015-CD17 (OPU day)

OPU package include: anesthesiologist, embryologist, gynae, day care ward, freeze for 1 year: RM12721

14/8/2015-CD18

Warded 1day post OPU due to complication: RM456.75 inc room and bed, consultations, medications (antibiotic vibramycin and panadol) and scans

Medication bought at AA pharmacy Bangsar:
Carbegoline 8 tabs : RM197
Norculut 5mg 2boxes X RM7: RM14

TOTAL: RM 680.40 inc GST

18/8/2015-CD22 (5 days post OPU)

Consultation RM111.30
Admin fees RM 11.80
Lab test for  Full blood count: RM172
TOTAL: RM337.60 inc GST

TOTAL bill so far for OPU cycle: RM 19784.70

Wow!! Banyaknyee..huhu..memang kena spare banyak duit tepi sbb xtau bile kena wat blood test, bile kena warded, bila kena g appointments, so jgn terkejut dgn total bil nnt..huhu

Next stop, FET!

My IVF Journey - Post OPU Complication

Assalammualaikum wbt.

Semlm, 18/8/15 merupakan temujanji pertama lepas OPU. Lepas warded 1 hari dan on Carbegoline utk 5 hari, so nk tgk result sama ada ovari masih bengkak atau tidak. Yes, salah satu komplikasi lepas OPU utk PCOSer is ovary lmbt surut. Alhamdulillah sign of OHSS xde lg. Since keluar ward haritu doctor mintk update kat dia 4 benda setiap pagi:

1. Ukur lilit pinggang
2. Berat badan
3. Input air
4. Output air kencing

So hari appointment tiba. Senak2 perut dah kurang, nk gerak pun da xbrape sakit. Nk bgn dr katil klu 1-2 hari lps discharge dulu pyh sgt, skrg da boleh, cuma kena push bdn guna tgn utk bgn..xbrani nk guna muscle perut. Alhamdulillah time scan, ovary sy yg 9cm tu dah surut jadi 8cm je..doktor kate lmbt jugak die respon pd carbegoline. Ovary 1 lagi masih 6cm. So, ubat carbegoline diteruskan sehingga next appointment 27/8/15, iaitu khamis depan.

So lepas scan tu, doctor tunjuk gmbr embryos day 3-6. Out of 5 yg berjaya fertilise aritu, 2 jadi blastocyte gred BB. Bb tu da cukup baik bg doktor sbb die kate by noon biasa die da jd AA. 1 masih stage morula. 1 masih stage 2 sel, 1 lagi byk fragmentation, which doc kate nmpk mcm sel tp sbnrnye bukan sel. Mcm cacat la. So end up freeze  blastocytes n morula tu shj.. Alhmdulillh.. That's good enough for me. Comel je tgk blastocyte tu..mmg tgk perfect je bulat n sel2 kat dlm.. Doktor beritahu yg biasa FET doktor mmg akan masuk 2/3 embryos..so doktor tnye nk brpe.. Kami tnye doktor balik ape yg terbaik..die kate dlm usia awak ni, 70% chances utk semua embryos survive implantation if masuk 3, so masuk 2 je la utk kurangka. Risiko multiple pregnancy.. Klu twin pun risky, lg la triplets. Sbnrnye byk soalan kami tanye doktor psl transfer ni. So sy listkn terus soal jawab ni:

1. Ape risiko mengandung twins?
Risiko untuk rahim xkuat. Klu die xsurvive time implant, tu mmg gene die xkuat, tp klu gugur time after 20 weeks, tu maknanya rahim xkuat. Biasa rahim xkuat sbb faktor umur, donor egg, donor sperm or surrogate mother. So in case awak, umur muda, dua2 sperm n ovum dr ibu bapa kandung, so probability utk survive tinggi.

2. Ape % live birth twins kat Pantai?
Dlm kes saya, setahun ade 36 kes twins, 3 gugur, so dlm 10% failure. Tp klu single pregnancy, ade dlm 50 lbh cmtu, 1 je gugur. Ni xtermasuk yg xsurvive implant sbb tu xkire gugur.

3. Ape umur baby untuk survive time lahir?
Bila berat baby dlm 1.5kg above, which dlm 7-8 bulan ke atas. Tp klu pregnant twins mmg kami akan induce birth dlm 8 bulan or early 9 mth.. Biasa 8 bln..

4. So nnt time FET semua akan di thaw kan ke or yg blastocyte je?
Itu bergantung pd embryologist jgk. Biasa 1 vial die letak 2 embryos. So kes awk ade 2 vials la. Paling cntik time FET tu blastocyte stage hatching, bukan da hatch, tp tgh hatch.

5. Mcm mane timeline utk FET?
Ok lepas ni habiskan norculut (norethisterone) untuk 12 hari, which rabu depan last dose, expected period mungkin dlm 1/9/15. Time tu da bole start ubat2 utk kuat dan tebalkan rahim. Ubat tu makan selama 3 minggu lebih kurang..so mungkin dlm akhir september lah FET.

So itulah lebih kurang. So skrg kena tumpukn kesembuhan ovary ku. Doktor still xbg gerak banyak, so mmg bedrest je la da hmpr 3 minggu..housechores semua husband yg buat, ok la sidai baju basuh bj, lipat je die xbuat lg so bertimbun2 baju dilonggokkan..haha..semput la die nk wat semua kje..baru tau penat jd surirumah smbil kerja.. Nnt time pregnant mmg kena cr pembantu la...die xlrt nk buat semua benda..huu...

Ok itu shj.. Bile la nk wat post kos ni..malas betul..huhu..

My IVF journey - OPU day

Assalammualaikum wbt..

11/8/15
Suntikan orgalutron di awalkan ke 10am dan suntikan decapeptyl pada jam 11pm

12/8/15
Mkn 10mg bisacodyl utk proses pembuangan air besar jam 6pm dan start puasa penuh jam 12am

13/8/15
Sampai hosp kol 7.20am..terus pergi bhgian admission. Dlm kol 8 pergi masuk wad day care kat blok C tingkat brpe xingat sbb da berdebar sgt..rupenye wad sblm ivf unit je..masuk bilik terus salun baju OT..doktor bius dtg dlm pukul 9.30..then kol 10 jalan kaki dr wad ke OT ivf..power jugak ivf unit sini ade bilik OT sndr..dalam bilik OT tu aduiyai berdebar sgt even ni kali ke 2 masuk OT..doc A interview sket2 tnye bile suntik ubat..doctor bius sempat buat lawak lg time nk masuk line kat tgn..then lps 30min sedar ade bende kena tarik dr mulut..adui tu sakit sikit sbb tgh lalok lg..pastu sedar balik ade kat luar OT..terus tnye nurse da pukul brpe..nurse kate kol 10.30...oooo mmg 30min je ek..lps tu kena sorong ke bilik, perut rase senak n sakit sgt..nk tdo pun xbole even tgh lalok..kol 2pm br bole mkn..pastu doktor A dtg..doktor kate time mula2 masuk needle die ter poke arteri, so ade bleeding kat faraj..die da jahit tp takut ade internal bleeding..die scan perut sbb die kate time procedur telur kanan tinggi sgt..so kanan dpt amik sikit je. Time scan lembut je doktor tekan sbb mmg tgh sakit..lps doc scan, pergi toilet terus burse kencing..n lega sikit xsakit sgt..lps tu mkn sandwich n panadol..br lega sket..tp tiba2 sakit lg..terus g toilet lg n kencing..then lega.. Dlm kol 7pm doctor A call, tanye sakit lg ke x..die kate blood result ok xde internal bleeding..bgtau doktor sakit time nk kencing..rase bloated..doktor kate sbb ovary tu mmg rapat kat bladder so jgn biar bladder penuh nnt mmg sakit. Mlm tu makan cabergoline 1/2biji utk permulaan.

14/8/15
Owh sebab doctor nk monitor psl internal bleeding tu day surgery jd in patient plak..so terbang la RM400++ huhu. Harini doctor scan tvs kat klinik die. Alhmdulillah xde internal bleeding, tp ovary kanan da tinggi sgt ni..die betul2 rest kat bladder..dan size die 9cm!!! Normal size ovary 2.5cm je..n post ivf ovary ptt dlm 5-6cm..i punya 9cm!! Doktor tanye ade mkn supplement pelik2 x 6 bulan lps..sy kate mmg xde..nk mkn multivit pun mls2 huhu.. Doktor kate mungkin sbb besar sgt so slight movement pun bole sbbkn ovari teralih. So kena betul2 bedresr as if xleh duduk langsung..baring je..huhu..ok doc! Sbb klu pecah lagi bahaya..so harini dpt discharge alhamdulillah..

Owh lupe nk bgtau, doc ade wassup gmbr embryos. Alhamdulillah doc dpt collect 7 ovums and 4 of them da start membahagi..1 br nk membahagi harini, 1 lysed 1 xmembahagi langsung.

Syukur ya Allah...

Doakan embryo kami membesar dgn jayanya jd blastocyte sblm di frozenkan..

My IVF Journey - S8 appointment

assalammualaikum wbt

Hari ni stumulation day 8, means hari terakhir untuk suntikan pergoveris, dan hari ke3 suntikan orgalutron.

Appointment dgn doc A dlm kol 11 td alhamdulillah berjln lancar. Eventho dpt turn no 10, tp sbb ramai xde dpn klinik, dpt skip 4 org huhu.. TVS nmpk byk gile telur n roughly je doktor cek saiz.. Mmg besar2.. Ade 17.5, ade 16.7.. Doktor nmpk puas hati dgn saiz skrg tp doc pun takut dgn potensi OHSS. So, doc kate proceed OPU khamis ni 13/8/15 kol 10pg. So kena daftar wad kol 7pg. Regime ubat pun bertukar. Orgalutron lg 2 dos, 1 inject mlm ni kol 11, satu lg inject esok pg kol 10pg. Then mlm kol 11pm 11/8/15 inject decapeptyl 2 dose sekali. Ptg 12/8/15, kol 6pm mkn dulcolax 2 biji n puasa tp bole lg minum air, n puasa semua mknn n minuman start kol 12am. Sblm balik tadi, doktor mintak suami buat ujian hep B and HIV, sy pun kena buat tp 12/8/15, sehari sblm opu. Doktor jugak bg ubat 3 bijik carbegoline untuk elak potensi OHSS. Yg ni mkn lps opu, but doc xbgtau mcm mne nk mkn. Semua ubat nnt saya review dlm post review ubat k.

Masa scan sempat tanye doktor, rase2 nye brape telur dpt ni. Die kate ade dlm 15 ni..tp sbb awk pcos takut ade yg kosong. So hope semua berjln lancar opu nnt. Sejak inject orgalutron, rase senak dah berkurang, tp mmg rase berat dgn perut..mcm rase terbakar (burning sensation) pun ade kdg2..tp klu baring mmg sedap xde rase sgt, tp mmg lenguh la..yela asyik baring je kejenye..lps opu nnt..ade mse bertenang since nk freeze all, so nk g berurut la kjp, hehe.. Ade suggestion x urut sedap area s alam?

And sy nk wat entry pasal kos ivf bile semua da selesai inshaAllah.

"I Had IVF When I Was Only 27": One Woman's Journey to Becoming a Mama

Marley (not her real name) is a 28-year-old marketing pro, wife, and stepmom (to teenagers) who's chronicling her journey to getting pregnant on her blog, So Call Me Crazy. Because her husband had a vasectomy before they were married, they've chosen IVF--and the process hasn't been without some bumps in the road. Take a look:

OK, give us a little background.
Marley: I'm madly in love with my husband and I have a great marketing career. I love to snowboard, road trip and read, and I never pass up the chance to go to happy hour. I want it all: I want to be a great wife, mom, friend and coworker. And, on the inside, I'm just trying to be happy and thankful even though I'm facing some emotional demons.

My husband (who is magazine good-looking!) is strong, witty and kind. He's the kind of man you want to be married to and the kind of father you want your kids to have. I'm so thankful that he picked me. 

I love my stepsons--one is 18 and one is 15. It's challenging being a stepmom because I often feel like an outsider with them, but they're really good people. They get good grades and make good decisions, and they treat me well. There's a lot of playing and laughter in our house.

My IVF Journey - IVF medication review

Assalammualaikum,

Disini sy nk terangkan dlm bahasa mudah 2 ubat yang sedang saya guna setakat ni.

1. Pergoveris 150iu/75iu

Pergo ni terdiri drpn 2 jenis sintetik hormon:

150iu/11mcg follitropin alfa (mimik Follicle stimulating hormone aka FSH)
& 75iu/3mcg lutropin alfa (mimik luteinising hormone aka LH)

So back to basic, FSH tugas die membesarkan follicle yg akan meningkatkan hormon estrogen dan hormon ni akan bantu utk perkembangan telur dlm follicle yg plg besar. Bila estrogen byk, ia akan ransang perembesan LH pulak utk telur dilepaskan keluar dari ovari (ovulation).

Biasanya pergo inject pada S1-S8

Setakat ni lepas S4 inject br rase senak2 perut n sakit pinggang..

2. Orgalutron 0.25mg/0.5ml

Orga ni terdiri drpn ganirelix.

Ganirelix ni dia adalah anti-gonadotrophin releasing hormone. Secara asas gonadotrophin releasing hormone(GnRH) merancang perembesan LH. So ganilerix merencatkan LH supaya tiada ovulasi berlaku selagi xde saiz follicle yg optimum dgn jumlah yg diperlukan.

Biasa orga inject pada S5-S8.

3. Decapeptyl

Mengandungi bahan aktif triptorelin, iaitu same dgn fungsi luiteining hormone releasing hormon (LHRH) yg bertindak pd kelenjar pituitary di otak.
Ok secara kasarnya, Perembesan LH dan estrogen dikawal oleh LHRH ni, so bila LHRH aktifkn kelenjar pituitary, LH dan estrogen pun meningkat, dan decapeptyl injection menambahkan amount rembesan both hormon ni. But bila byk sht LHRH+decapeptyl, kelenjar pituitary jd desensitize dan akhirnya mengurangkan perembesan LH dan estrogen. Deca membantu dlm proses akhir utk pematangan telur

Decapeptyl injek 36jam sebelum egg retrival.


4. Carbegoline

Ubat ini saya makan selepas OPU. Ni untuk mengurangkan simpton OHSS. Pada dasarnya ubat ini utk treat hyperprolactemia iaitu byknye hormon prolactin dlm bdn, prolactin ni penting utk penghasilan susu.
But in my case, as decapeptyl is injected, so takut efek die xreduce lps opu, jd carbegoline act as inhibitor la kpd decapeptyl.

Saya da mkn 12 biji setakat ni since ovari sy still bengkak 8cm even seminggu lps opu.

Ok itu shj info ubat-ubatan.. Nanti dah start ubat baru sy review pulak.

My IVF Journey - S5

S5 means stimulation day 5.

Assalammualaikum.

Harini cek up utk tgk size telur in response to pergoveris for the past 5 days. Alhamdulillah ade 1 biji belah kanan yg size 15mm, 1 biji lagi 14mm belah kiri. Tp secara keseluruhannya doc xpuas hati tgk keadaan ovari sbb dua2 ovari penuh dgn telur kecik2. Patut la rase senak sejak semlm. Nk tdo pun susah.. Sbb semua telur tu berebut2 nk membesar same..huhu..but doc kate just nice with plan, mlm ni da bole start injection orgalutron pukul 11pm. Alhamdulillah..

Lepas keluar bilik doktor mood terus baik, sbb dpt good news alhamdulillah.. Padahal td muke punya la monyok sbb cuak bagai. Husband excited sgt..xsabar nk tgk embabies..hehe..sejak ivf start ni die rajin la gugel mcm2 istilah ttc.. 2ww tu ape, dpo tu ape..hehe..hari ni ajar istilah embabies plak..represent embryo + babies. Setiap mlm pun kami akan tgk video2 icsi, stage fertilization.. Nk bg attraction tu ade. Smpai husband angan2 la nk wat ivf machine sendiri..huhu..he and his robotic maniac.

So, cant wait for another appointment this coming monday, 10/8/15, on S8.

And doctor pesan xleh renyah2 dah skrg. Sbb takut telur ruptured. Solat pun kena duduk, xleh bongkok2.. Bersama pun xleh.. Tp air mani kena keluarkan n buang pd 9/7/15 nnt.

Ok baik doctor.

Doakan telur saya cantik membesar dan penuh dgn isi.

My IVF journey

Assalammualaikum wbt..

Wowwww sekian lama tidak menulis..and im back!!

Actually byk fasa ttc yg dah lalui..mari kite singkatkan:

7 Jan 2015: laparoscopy ovarian drilling with prof hatta (suami dr adilah) di HUKM
Mac 2015: followup with dr adilah again post laps, seems my ovary didnt react positively with laps. Doctor suggest to procees iui or ivf..
Apr 2015: we decide to proceed IVF next cycle.
Mei 2015: IVF postpone for 3 cycle as i was warded due to leptospirosis.

Sadis jugak time warded bln 5 tu sbb da semangat nk start ivf. Tp Allah lbh tau apa yg terbaik.. Instead xdpt proceed, dpt ikut suami bercuti ke Los Angeles!! Hehe..klu start ivf gamaknya tinggallah xdpt ikut..

Ok as soon as period bulan julai appear, terus buat appointment dgn doc adilah:

28 julai 2015: CD2

Doc scan TVS untuk cek telur, time ni baru cd2.. Doc kate belum cukup 3 bulan selepas masuk ward bln mei tu.. Klu nk ikutkan 15/8/15 br cukup 3 bulan. Doc sgt particular sbb menurut doc, concern dia ialah liver ade problem x as ubat n kuman akan cerna kat situ.. So doc mintk dtg blk hari jumaat utk scan skali lg.. N time ni doc da bg senarai ubat yg kena beli.


1 ogos 2015: CD6

Sepatutnya appointment kol 11, tp tiba2 doc kena masuk OT kol 11 tu..ape lg memecutla dr shah alam kol 10.15 ke pantai bangsar. Kol 10.45 smpai terus amik valet je sbb sure penuh parking. Then naik tunggu 1 turn n dpt jumpe doc. Doc scan n tgk bole proceed injection ahad atau isnin.. Tp doc suruh tunjukk. Blood test time warded lepto. Aduiii.. Mane ntah simpan segala bils tu..ptg tu balik n cari2 ade resit je..lap result xde.. Terus msj doc...mlm nr doc reply bgtau esok kena dtg buat blood test kat pantai.

2 ogos 2015: CD7

Kol 10.30 sampai pantai. Jumpe nurse salina amik borang withdraw darah, n proceed ke tingkat 2 bangunan yg sama ke outpatient lab. Lps da withdraw darah terus msj doc.. Skali doc kate apsal lmbt sgt amik darah sbb lab hri ni separuh hari je...huaaaa apsal bole lupe sabtu separuh hari.. Sejak xbekerja ni mmg lupe dah hri ape org kje huhu..

3 ogos 2015:

Pagi2 msj doc tanye bile nk start injection, doc reply since blood result esok pg br bole tgk, esok pg2 isnin tu jumpe die 1st pts. So kami pun kelam kabut call kak Futk beli ubat pagi ahad tu...tup tap kol 11 sampai rumah kak F.baik sgt kak F ni hidang kuew tiow lg pd kami..dia kate kami muda lg ni. Kak  F ajar mcm mane nk guna semua ubat n suami kak F bg tips2 semasa rawatan..dia kate jgn stress.. Buat mcm mula2 kawin dulu. Layan isteri mcm puteri bila da transfer telur nnt. Jgn buat kerja2 kasar..baring je klu bole..naik tangga pun xbole..solat pun kena duduk..byk tips lg dapat..baik sgt both of them.. Then total kos ubat RM4550 termasuk sringe n jarum2..

Nk tau x ubat ape yg mahal sgt tu? Hehe

Ingat nk upload gmbar tp xtau cane setting ipad ni. Kite senaraikan je lah k:

Pergoveris (fillotropin) 0.5ml
Orgalutron
Decapeptyl
Crinone (progesterone vaginal gel)

Sekarang ni tgh injection Pergoveris shj. Pergoveris ni utk stimulate folicle development. Esok scan pada Stimulation Day 5 (S5). Klu ivf cycle die ikut stimulation day brpe sbb klu ikut cycle day mcm xvalid sgt. Doakan esok telur cntik membesar dgn jayanya ya.

See u again..byeeeee...